My 32 year Journey with Crohn’s and a new ileostomy…

This is the story of the warrior I have always been on the inside and now showing that badge (BAG) of courage. The evolution of my inner strength, willpower and determination…

I’m a 48 year old mother of three with a new ileostomy from Crohn’s disease of 32 years, having been diagnosed at 16 and with ulcerative colitis showing up now and then.
 I’ve been blessed to have had three successful pregnancies and three beautiful healthy children who are 20, 16 and 10.
    I finally ended up with an ileostomy in May of this year with my 5th obstruction in five years since my last bowel resection in 2011. So it was time to just call it and get the bag…

You can show your bag or hide your bag.  It’s personal choice.  Me?  I’m an ostomy warrior and this is my calling, to spread awareness and encourage others.  

This is the story of the warrior I have always been on the inside and now showing that badge (BAG) of courage.   The evolution of my inner strength, willpower and determination, which have always been strong and at the forefront of my personality, have now come together as ostomy awareness advocacy.

All because of an illness I have no control over and an ostomy bag I’ve tried to avoid forever.   How’s that for IRONY?  And now it seems like the pieces of the puzzle of my life are starting to come together.

So, that’s the overview.  I’m a babe with a bag and that’s my outlook. There’s a lot to the last 32 years.  I’m sure we will laugh, cry and dump our bags together.  Happy reading 🙂

Author: crohns ostomy warrior woman

I'm a 48 year old mom of three, with Crohn's and UC for the last 32 years. I only recently in May of 2016 have had a permanent ileostomy and I am now getting used to life with a bag. Considering the fact that I was so against the idea of a bag for years, choosing to suffer instead of even learning about it, being worried about all the negative impact I assumed a bag would have on my self-esteem, my lifestyle, any romantic relationship, etc. -- I have to say I have DAMN well shocked myself that I went from the outlook of, "I'd rather ride my motorcycle off a cliff than have a bag" -- to recently becoming a new ileostomate who has found a passion of advocacy and awareness. My 32 year illness and finally this bag has somehow ignited yet another passion in my life besides fitness. I want to join the other advocates for knowledge about the invisible illnesses that can lead to ostomy bags and what we all deal with and many of us try to hide. I'm passionate about bringing more awareness about ostomies to the general public. I'm hoping my blog will encourage and inspire other people who are getting a bag or already have one, to realize they can still live their wonderful life and once they are healed up from surgery, they can resume their active lifestyle or even start a new one. It does not make them any less amazing. You are still who you are, and if anything, you're stronger for the struggle. So go climb the mountains, surfboard, climb treetops courses and do triathalons if that's what you're inspired to do. Make this the new and improved you with the bag. At least now we all don't have to run to the toilet every 3 minutes! Wear your bag proudly at the pool or beach. Wear those crop tops or low slung jeans. It's our battle and we won because we're still here. I'm still sexy and I know it, with my bag, and so are all of you.

3 thoughts on “My 32 year Journey with Crohn’s and a new ileostomy…”

  1. Hey!! How weird to find this entry. A couple of weeks ago, I reached out to my contact at UOAA telling him that I think we need to do an ostomate calendar. Hopefully we get some logistics worked out soon!!! 🙂 Great minds think alike!! I have Crohn’s Disease and have had my ileostomy for 10 years. It was, BY FAR, the best medical decision I’ve ever made.

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  2. Great post! You are only a few weeks to months with your ileostomy is that correct? If so, you are so brave already to be showing off your bag! I feel like it takes people years to develop that confidence. I am having ostomy surgery sept 28- not sure if it’s colostomy or ilesostomy until the surgeon gets in there. Love your confidence! I look forward to following your blog!

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    1. Thank you, Jcrohnie715. It’s not as bad as I had imagined in my head. There is a lot to learn about blogging and I have so much to share, but I am admittedly slowly teaching myself how to use this blogging tool. I am hoping to have sections on here with different topics for people to go to.
      To maybe be able to at least tell people what my own beginning adventures of having the bag was like, mentally and physically adapting.
      As well as offering FB sites and groups and pages where people can go to learn more and read from people who have been through this far longer than I have.
      I just want to encourage people, especially women, not to lose their sense of self or their sexy side or any of that. I’m sure men deal with those thoughts too, but being a woman, I can only share the thoughts that have crossed my mind before surgery and after.
      I’m glad to help listen and give you any helpful feedback I may be able to offer, even if it’s just lending an ear because you need it. I think that’s one of the biggest things. We should NOT feel along.
      Think positively on your upcoming surgery. Do as much research as you can on both types, google, Facebook. It’s out there if you look for it. Best of luck to you and I look forward to hearing how your recovery goes. Blessings, Suzana

      Liked by 1 person

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