Sh-t happens…too often

…we are talking a whole other ballgame of poop, people. I gotta tell you, 32 years of Crohns and the last four years with very little large intestine, made for some real interesting moments.

But now I’m here at BAG time…

poosAs many of you know who suffer from Crohns, Colitis, IBS, etc, the output we have is a never ending source of gross, different smells, frequency and jokes if we can be light hearted enough about it.

    Enter now the Ostomy Community who deal with colostomy and ileostomy bags.   Now we are talking a whole other ballgame of poop, people.  I gotta tell you,  32 years of Crohns and the last four years with very little large intestine, made for some real interesting moments.

    But now I’m here at BAG Time… bag

I have on occasion made it three or four days with a wafer, aka barrier…the item or appliance as the companies and professionals seem to call it.  They say appliance, I think toaster.  Huh??  So whatever it may be called, it’s that sticky circle/oval,square that has a center hole where your stoma goes through and a plastic ring usually for your bag to attach to, if you are a two piece bag user like me.

    This morning was one of those mornings I have been lucky enough to avoid, somehow, over the last two plus weeks.  Just enough time, honestly, for me to almost forget I have a bag on, really.  That sounds incredulous if you don’t have a bag, but really when all systems are working well and you are pretty used to the daily dumping routine; even two months down the road with the bag can seem like it’s kind of “old hat” some days.

    Well, today was one of those mornings that just did not go right in so many ways.  I’ve spoken with many ostomates on chat rooms and we’ve all had leaks at some point or another.  Some still fight it daily, some weekly.  Some are more blessed and have come up with some type of great protocol for wafer, paste, hair dryer, barrier ring, skin preparatory wipe or spray, extra adhesives for after the darn thing is on, etc.

     Well, this morning got the best of me with a hey, you’re lying in your own poop, wakeup call.  I really hate these mornings.  I’m working on still coming up with more ways to make this wafer NOT give out when my bag is overfull.

   Unfortunately, that’s exactly what happened, and the pressure of a very full bag of poo, plus air, equals too much pressure on the flange/wafer and BOOM, you now have a part of that seal against your skin that is not sealed anymore.  Funny how it can be just a quarter inch of an opening, but boy is it a gross mess to deal with when you are mid dream state and still sleepy tired.

   Since I went on far too long and maybe a bit off topic, I shall save my morning escapade of poo for another blog post.  Hoping for dry evening again to all who share this issue.  Blessings and dry sheets 🙂







Author: crohns ostomy warrior woman

I'm a 48 year old mom of three, with Crohn's and UC for the last 32 years. I only recently in May of 2016 have had a permanent ileostomy and I am now getting used to life with a bag. Considering the fact that I was so against the idea of a bag for years, choosing to suffer instead of even learning about it, being worried about all the negative impact I assumed a bag would have on my self-esteem, my lifestyle, any romantic relationship, etc. -- I have to say I have DAMN well shocked myself that I went from the outlook of, "I'd rather ride my motorcycle off a cliff than have a bag" -- to recently becoming a new ileostomate who has found a passion of advocacy and awareness. My 32 year illness and finally this bag has somehow ignited yet another passion in my life besides fitness. I want to join the other advocates for knowledge about the invisible illnesses that can lead to ostomy bags and what we all deal with and many of us try to hide. I'm passionate about bringing more awareness about ostomies to the general public. I'm hoping my blog will encourage and inspire other people who are getting a bag or already have one, to realize they can still live their wonderful life and once they are healed up from surgery, they can resume their active lifestyle or even start a new one. It does not make them any less amazing. You are still who you are, and if anything, you're stronger for the struggle. So go climb the mountains, surfboard, climb treetops courses and do triathalons if that's what you're inspired to do. Make this the new and improved you with the bag. At least now we all don't have to run to the toilet every 3 minutes! Wear your bag proudly at the pool or beach. Wear those crop tops or low slung jeans. It's our battle and we won because we're still here. I'm still sexy and I know it, with my bag, and so are all of you.

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